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Brian E. Chapman, Ph.D. Medical Informatics, Epistemic Justice, and the Patient Experience
  • About
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    Resources about Healthcare, Disease, and Patient Experiences

    • Aliceheimer’s: Alzheimer’s Through the Looking Glass
      • author: Dana Walrath
      • subject: dementia, Alzheimer’s
      • genre: memoir, graphic, patient perspective
      • format: book
    • Apparently Healthy, but Diagnosed With Alzheimer’s?
      • author: Paula Span
      • subject: Alzheimer’s
      • genre: reporting
      • format: article
    • Better: A Surgeon’s Notes on Performance
      • author: Atul Gawande
      • subject: healthcare
      • genre: memoir, clinician perspective
      • format: book
    • Brain Cancer Was Supposed to Kill Me. Instead, It Gave Me a Second Life
      • author: Rod Nordland
      • subject: brain cancer
      • genre: memoir, essay, patient experience
      • format: article
    • Can’t We Talk About Something More Pleasant
      • author: Roz Chast
      • subject: aging
      • genre: memoir, graphic, family perspective
      • format: book
    • Cancer Vixen
      • author: Marisa Acocella Marchetto
      • subject: breast cancer, cancer
      • genre: memoir, graphic, patient perspective
      • format: book
    • Care and Cure: An Introduction to Philosophy of Medicine
      • author: Jacob Stegenga
      • subject: healthcare
      • genre: philosophy
      • format: book
    • Coma
      • author: Zara Slattery
      • subject: coma
      • genre: memoir, graphic, patient perspective
      • format: book
    • Diabetes and an inescapable (auto)ethnography
      • author: Mark Lucherini
      • subject: diabetes
      • genre: autoethnography
      • format: journal article
    • Doctors and Healers
      • author: Tobie Nathan and Isabelle Stengers
      • subject: healthcare
      • genre: philosophy, science and technology studies
      • format: book
    • Dumb: Living without a voice
      • author: Georgia Webber
      • subject: mutism
      • genre: memoir, graphic, patient perspective
      • format: book
    • Encounters in a World of Pain: An Autoethnography
      • author: Ann Neville-Jan
      • subject: pain
      • genre: autoethnography
      • format: journal article
    • First, a Cancer Diagnosis. Then a Split-Second Decision About Fertility
      • author: Holly Burns
      • subject: cancer, fertility
      • genre: reporting, patient experience
      • format: article
    • How to Spot Kawasaki Disease in Your Child
      • author: Emily Baumgaertner
      • subject: Kawasaki disease
      • genre: news article
      • format: article
    • I had babies in Germany 10 years apart. This is what I learned about healthcare, motherhood and race
      • author: Sharmaine Lovegrove
      • subject: pregnancy, social determinants
      • genre: essay
      • format: article
    • In Pain: A bioethicist’s personal struggle with opiods
      • author: Travis Rieder
      • subject: pain, opiods, ethics
      • genre: memoir, autoethnography
      • format: book
    • Intoxicated by my Illness
      • author: Anatole Broyard
      • subject: cancer, dying
      • genre: essays, patient perspective
      • format: book
    • Limits to Medicine: Medical Nemesis: The Expropriation of Health
      • author: Ivan Illich
      • subject: medicine
      • genre: philosophy
      • format: book
    • Malignant : how cancer becomes us
      • author: S. Lochlann Jain
      • subject: breast cancer
      • genre: autoethnography, patient perspective
      • format: book
    • Meeting the Self at the Crossroads: Thoughts on Aging as a Young Cancer Survivor
      • author: Susan M. Hannum
      • subject: cancer
      • genre: autoethnography
      • format: journal article
    • Mom’s Cancer
      • author: Brian Fies
      • subject: cancer
      • genre: memoir, graphic, family perspective
      • format: book
    • My Age of Anxiety: Fear, hope, dread, and the search for peace of mind
      • author: Scott Stossel
      • subject: anxiety
      • genre: memoir, patient experience
      • format: book
    • My Degeneration
      • author: Peter Dunlap-Shohl
      • subject: Parkinson’s
      • genre: memoir, graphic, patient perspective
      • format: book
    • One Twin Was Hurt, the Other Was Not. Their Adult Mental Health Diverged.
      • author: Ellen Barry
      • subject: mental health
      • genre: reporting
      • format: article
    • Panic at the Disco-Urse: Episodes from an Analytic Autoethnography about Living with HIV
      • author: Jon Willis
      • subject: HIV
      • genre: autoethnography
      • format: journal article
    • Paolo Pellegrin’s Photographic Quest for the Sublime
      • author: Ben Taub
      • subject: glaucoma
      • genre: reporting, patient experience
      • format: article
    • Parenthesis
      • author: Élodie Durand
      • subject: cancer, astrocytoma
      • genre: memoir, graphic, patient perspective
      • format: book
    • Recovery From Heart Attack, Biomedicalization, and the Production of a Contingent Health Citizenship
      • author: Darren Langdridge
      • subject: cardiovascular
      • genre: autoethnography
      • format: journal article
    • She Has a Pain Problem, Not a Pill Problem: Chronic Pain Management, Stigma, and the Family—An Autoethnography
      • author: Loren E. Wilbers
      • subject: pain
      • genre: autoethnography
      • format: journal article
    • Stitches
      • author: David Small
      • subject: cancer
      • genre: memoir, graphic, patient perspective
      • format: book
    • Talking about my cancer either drew people to me or repelled them far away
      • author: Litsa Dremousis
      • subject: cancer
      • genre: patient perspective
      • format: article
    • The Bad Doctor
      • author: Ian Williams
      • subject: general practice
      • genre: fiction, graphic, clinical perspective
      • format: book
    • The Emperor of all Maladies
      • author: Siddhartha Mukherjee
      • subject: cancer
      • genre: history
      • format: book
    • The Invisibile Kingdom: Reimagining Chronic Illness
      • author: Meghan O’Rourke
      • subject: autoimmune disorders
      • genre: memoir, patient perspective
      • format: book
    • The Lady Doctor
      • author: Ian Williams
      • subject: general practice
      • genre: fiction, graphic, clincial perspective
      • format: book
    • The Lonely Patient: How We Experience Illness
      • author: Michael Stein
      • subject: healthcare
      • genre: memoir, clinician perspective
      • format: book
    • The Noonday Demon: An Atlas of Depression
      • author: Andrew Solomon
      • subject: depression
      • genre: memoir, patient experience
      • format: book
    • The Undying: A Meditation on Modern Illness
      • author: Anne Boyer
      • subject: cancer
      • genre: memoir, patient perspective
      • format: book
    • The Wounded Storyteller
      • author: Arthur W. Frank
      • subject: cancer
      • genre: autoethnography, patient perspective
      • format: book
    • The mothers fighting a scandal bigger than thalidomide: ‘We were told the medication was safe’
      • author: Anna Moore
      • subject: pregnancy, thalidomide, epistemic rights
      • genre: reporting
      • format: article
    • Things to Do in a Retirement Home Trailer Park When You Are 29 and Unemployed
      • author: Aneurin Wright
      • subject: emphysema
      • genre: graphic, memoir, family perspective
      • format: book
    • Travellers to Unimaginable Lands
      • author: Dasha Kiper
      • subject: dementia
      • genre: reporting
      • format: book
    • Us Two Together
      • author: Ephameron
      • subject: dementia, primary progressive aphasia
      • genre: memoir, patient perspective, graphic
      • format: book
    • Waiting for the Monsoon
      • author: Rod Nordland
      • subject: brain cancer
      • genre: memoir, patient experience
      • format: book
    • What Cancer Takes Away
      • author: Anne Boyer
      • subject: cancer, death
      • genre: memoir
      • format: article
    • When We Do Harm: A Doctor Confronts Medical Error
      • author: Danielle Ofri
      • subject: medical error
      • genre: memoir, clinician perspective
      • format: book
    • Why our fear of cancer is outdated — and harmful
      • author: David Ropeik
      • subject: cancer
      • genre: opinion
      • format: article
    • ‘Good cholesterol’ and dementia: Researchers chart a correlation
      • author: Linda Searing
      • subject: dementia
      • genre: reporting
      • format: article
    • ‘I felt I was being assessed on my skin colour’: Black women around the world share their birth stories
      • author: Grace Holliday
      • subject: pregnancy, social determinants
      • genre: reporting
      • format: article
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    © 2026 Brian E. Chapman, Ph.D..