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Pushing Against Ignorance My Personal Quest to Improve Healthcare

      Brian E. Chapman, Ph.D.

      • Melbourne, Australia
      • Website
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      • Brian E. Chapman, Ph.D.
        • Home
        • About
        • Informatics Experiences
        • Medical narratives
        • Research
        • Talks and Lectures
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      Resources about Healthcare, Disease, and Patient Experiences

      • Aliceheimer’s: Alzheimer’s Through the Looking Glass
        • author: Dana Walrath
        • subject: dementia, Alzheimer’s
        • genre: memoir, graphic, patient perspective
        • format: book
      • Apparently Healthy, but Diagnosed With Alzheimer’s?
        • author: Paula Span
        • subject: Alzheimer’s
        • genre: reporting
        • format: article
      • Better: A Surgeon’s Notes on Performance
        • author: Atul Gawande
        • subject: healthcare
        • genre: memoir, clinician perspective
        • format: book
      • Brain Cancer Was Supposed to Kill Me. Instead, It Gave Me a Second Life
        • author: Rod Nordland
        • subject: brain cancer
        • genre: memoir, essay, patient experience
        • format: article
      • Can’t We Talk About Something More Pleasant
        • author: Roz Chast
        • subject: aging
        • genre: memoir, graphic, family perspective
        • format: book
      • Cancer Vixen
        • author: Marisa Acocella Marchetto
        • subject: breast cancer, cancer
        • genre: memoir, graphic, patient perspective
        • format: book
      • Care and Cure: An Introduction to Philosophy of Medicine
        • author: Jacob Stegenga
        • subject: healthcare
        • genre: philosophy
        • format: book
      • Coma
        • author: Zara Slattery
        • subject: coma
        • genre: memoir, graphic, patient perspective
        • format: book
      • Diabetes and an inescapable (auto)ethnography
        • author: Mark Lucherini
        • subject: diabetes
        • genre: autoethnography
        • format: journal article
      • Doctors and Healers
        • author: Tobie Nathan and Isabelle Stengers
        • subject: healthcare
        • genre: philosophy, science and technology studies
        • format: book
      • Dumb: Living without a voice
        • author: Georgia Webber
        • subject: mutism
        • genre: memoir, graphic, patient perspective
        • format: book
      • Encounters in a World of Pain: An Autoethnography
        • author: Ann Neville-Jan
        • subject: pain
        • genre: autoethnography
        • format: journal article
      • First, a Cancer Diagnosis. Then a Split-Second Decision About Fertility
        • author: Holly Burns
        • subject: cancer, fertility
        • genre: reporting, patient experience
        • format: article
      • How to Spot Kawasaki Disease in Your Child
        • author: Emily Baumgaertner
        • subject: Kawasaki disease
        • genre: news article
        • format: article
      • I had babies in Germany 10 years apart. This is what I learned about healthcare, motherhood and race
        • author: Sharmaine Lovegrove
        • subject: pregnancy, social determinants
        • genre: essay
        • format: article
      • In Pain: A bioethicist’s personal struggle with opiods
        • author: Travis Rieder
        • subject: pain, opiods, ethics
        • genre: memoir, autoethnography
        • format: book
      • Intoxicated by my Illness
        • author: Anatole Broyard
        • subject: cancer, dying
        • genre: essays, patient perspective
        • format: book
      • Limits to Medicine: Medical Nemesis: The Expropriation of Health
        • author: Ivan Illich
        • subject: medicine
        • genre: philosophy
        • format: book
      • Malignant : how cancer becomes us
        • author: S. Lochlann Jain
        • subject: breast cancer
        • genre: autoethnography, patient perspective
        • format: book
      • Meeting the Self at the Crossroads: Thoughts on Aging as a Young Cancer Survivor
        • author: Susan M. Hannum
        • subject: cancer
        • genre: autoethnography
        • format: journal article
      • Mom’s Cancer
        • author: Brian Fies
        • subject: cancer
        • genre: memoir, graphic, family perspective
        • format: book
      • My Age of Anxiety: Fear, hope, dread, and the search for peace of mind
        • author: Scott Stossel
        • subject: anxiety
        • genre: memoir, patient experience
        • format: book
      • My Degeneration
        • author: Peter Dunlap-Shohl
        • subject: Parkinson’s
        • genre: memoir, graphic, patient perspective
        • format: book
      • One Twin Was Hurt, the Other Was Not. Their Adult Mental Health Diverged.
        • author: Ellen Barry
        • subject: mental health
        • genre: reporting
        • format: article
      • Panic at the Disco-Urse: Episodes from an Analytic Autoethnography about Living with HIV
        • author: Jon Willis
        • subject: HIV
        • genre: autoethnography
        • format: journal article
      • Paolo Pellegrin’s Photographic Quest for the Sublime
        • author: Ben Taub
        • subject: glaucoma
        • genre: reporting, patient experience
        • format: article
      • Parenthesis
        • author: Élodie Durand
        • subject: cancer, astrocytoma
        • genre: memoir, graphic, patient perspective
        • format: book
      • Recovery From Heart Attack, Biomedicalization, and the Production of a Contingent Health Citizenship
        • author: Darren Langdridge
        • subject: cardiovascular
        • genre: autoethnography
        • format: journal article
      • She Has a Pain Problem, Not a Pill Problem: Chronic Pain Management, Stigma, and the Family—An Autoethnography
        • author: Loren E. Wilbers
        • subject: pain
        • genre: autoethnography
        • format: journal article
      • Stitches
        • author: David Small
        • subject: cancer
        • genre: memoir, graphic, patient perspective
        • format: book
      • Talking about my cancer either drew people to me or repelled them far away
        • author: Litsa Dremousis
        • subject: cancer
        • genre: patient perspective
        • format: article
      • The Bad Doctor
        • author: Ian Williams
        • subject: general practice
        • genre: fiction, graphic, clinical perspective
        • format: book
      • The Emperor of all Maladies
        • author: Siddhartha Mukherjee
        • subject: cancer
        • genre: history
        • format: book
      • The Invisibile Kingdom: Reimagining Chronic Illness
        • author: Meghan O’Rourke
        • subject: autoimmune disorders
        • genre: memoir, patient perspective
        • format: book
      • The Lady Doctor
        • author: Ian Williams
        • subject: general practice
        • genre: fiction, graphic, clincial perspective
        • format: book
      • The Lonely Patient: How We Experience Illness
        • author: Michael Stein
        • subject: healthcare
        • genre: memoir, clinician perspective
        • format: book
      • The Noonday Demon: An Atlas of Depression
        • author: Andrew Solomon
        • subject: depression
        • genre: memoir, patient experience
        • format: book
      • The Undying: A Meditation on Modern Illness
        • author: Anne Boyer
        • subject: cancer
        • genre: memoir, patient perspective
        • format: book
      • The Wounded Storyteller
        • author: Arthur W. Frank
        • subject: cancer
        • genre: autoethnography, patient perspective
        • format: book
      • The mothers fighting a scandal bigger than thalidomide: ‘We were told the medication was safe’
        • author: Anna Moore
        • subject: pregnancy, thalidomide, epistemic rights
        • genre: reporting
        • format: article
      • Things to Do in a Retirement Home Trailer Park When You Are 29 and Unemployed
        • author: Aneurin Wright
        • subject: emphysema
        • genre: graphic, memoir, family perspective
        • format: book
      • Travellers to Unimaginable Lands
        • author: Dasha Kiper
        • subject: dementia
        • genre: reporting
        • format: book
      • Us Two Together
        • author: Ephameron
        • subject: dementia, primary progressive aphasia
        • genre: memoir, patient perspective, graphic
        • format: book
      • Waiting for the Monsoon
        • author: Rod Nordland
        • subject: brain cancer
        • genre: memoir, patient experience
        • format: book
      • What Cancer Takes Away
        • author: Anne Boyer
        • subject: cancer, death
        • genre: memoir
        • format: article
      • When We Do Harm: A Doctor Confronts Medical Error
        • author: Danielle Ofri
        • subject: medical error
        • genre: memoir, clinician perspective
        • format: book
      • Why our fear of cancer is outdated — and harmful
        • author: David Ropeik
        • subject: cancer
        • genre: opinion
        • format: article
      • ‘Good cholesterol’ and dementia: Researchers chart a correlation
        • author: Linda Searing
        • subject: dementia
        • genre: reporting
        • format: article
      • ‘I felt I was being assessed on my skin colour’: Black women around the world share their birth stories
        • author: Grace Holliday
        • subject: pregnancy, social determinants
        • genre: reporting
        • format: article
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