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Angela and Rudi

In this video you will meet first-time parents Angela and Rudi. Their experiences illustrate many interesting informatics concepts, including health literacy, epistemic virtues, challenges with patient-clinician communications, and hermeneutical injustice. Their experiences provide a good contrast to what a patient experience in the USA would be post the 21-century Cures Act and the banning of Information Blocking.

Key Medical Concepts

Diagnosis of preeclampsia

Coping strategies and information seeking

Labor and delivery and NICU

Infants at home and reflections